LEAP
Introducing
The Lived Experience Advisory Panel for Misophonia* Research
*and misokinesia and related afflictions.
What is the Lived Experience Advisory Panel for Misophonia [LEAP]?
The Lived Experience Advisory Panel for Misophonia [LEAP], a subset of the Misophonia Research Network [MRN], is a diverse panel of 5-8 volunteers, all of whom have lived experience with misophonia, including individuals with the disorder and their family members.
LEAP evolved as a response to growing research and awareness of misophonia and the need for inclusive representation of personal experience with misophonia in the ongoing research, media, and beyond.
Submission Process
What types of content does LEAP review?
study concepts
academic/research papers
social media posts
blog articles & essays
presentations
news publications
and more!
At this time, LEAP will also give feedback on unrelated content that the creator aims to adapt for a misophonic audience.
Inquiring researchers, clinicians, journalists, etc. should submit their work to LEAP via the email leap@soquiet.org, allowing three weeks for reviewing and processing.
Researchers seeking feedback during the development of scientific research should include the following if applicable:
Abstract: 1 page or less
Aims: 1 page or less
Impact statement: 1 page or less
Goals of the LEAP:
To review materials submitted by misophonia researchers, clinicians, and other content creators in an effort to:
Assist researchers, clinicians, and content creators in understanding the needs and viewpoints of those with lived experience of misophonia, in general.
Help researchers develop research topics and hypotheses about misophonia that are informed by first-hand experience and represent the misophonia community.
Support researchers and content creators to better understand the impact of wording used in social media posts, research papers, blog articles, presentations, news publications, and more to help build a more cohesive representation of misophonia that includes accurate lived experience.
Support and uphold ethics in research as stated by the National Institutes of Health with the understanding that science and its institutions are vulnerable to disability discrimination, racism, sexism, homophobia and the like. LEAP will attend to the potential intersection of scientific research and these forces of oppression that are sometimes repeated within the practice and production of science and scientific knowledge.
LEAP into the panel!
Would you like to be a part of this important misophonia research panel? Complete the application form here.
We are always looking for unique new members of the LEAP!
LEAP Panelists
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Jennifer Brout, PsyD
Has misophonia & is a parent of a person with misophonia.
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Heather Hansen, PhD
Has misophonia.
-
Mary Petrie, PhD
Parent of a person with misophonia.
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Cris Edwards, MFA, CPS
Has misophonia.
-
CJ Gibson, BA
Has misophonia.